Archive for personalised medicine

the DeepMind debacle

Posted in Books, Statistics, Travel with tags , , , , , , , , on August 19, 2017 by xi'an

“I hope for a world where data is at the heart of understanding and decision making. To achieve this we need better public dialogue.” Hetan Shah

As I was reading one of the Nature issues I brought on vacations, while the rain was falling on an aborted hiking day on the fringes of Monte Rosa, I came across a 20 July tribune by Hetan Shah, executive director of the RSS. A rare occurrence of a statistician’s perspective in Nature. The event prompting this column is the ruling against the Royal Free London hospital group providing patient data to DeepMind for predicting kidney. Without the patients’ agreement. And with enough information to identify the patients. The issues raised by Hetan Shah are that data transfers should become open, and that they should be commensurate in volume and details to the intended goals. And that public approval should be seeked. While I know nothing about this specific case, I find the article overly critical of DeepMind, which interest in health related problems is certainly not pure and disinterested but nonetheless can contribute advances in (personalised) care and prevention through its expertise in machine learning. (Disclaimer: I have neither connection nor conflict with the company!) And I do not see exactly how public approval or dialogue can help in making progress in handling data, unless I am mistaken in my understanding of “the public”. The article mentions the launch of a UK project on data ethics, involving several [public] institutions like the RSS: this is certainly commandable and may improve personal data is handled by companies, but I would not call this conglomerate representative of the public, which most likely does not really trust these institutions either…